EB 1992 - hormonal factors in breast cancer - data structure and protocols

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Contents List

Specification of EB 1992 form format

 
GENERAL INFORMATION
Item Description FORTRAN Columns Details
-1 Card type 'A' 1 'GENERAL INFORMATION'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date of birth I6 23 - 28 DDMMYY
3 Case/control status I1 30
Value Description
1 Case
2 Control
 
4 Set number I6 32 - 37
5 (Pseudo)diagnosis date I6 39 - 44 DDMMYY 
6 Tumour stage (cases only) A2 46 - 47  
7 Tumour histology (cases only) A5 49 - 53  
8 First detected in a screening programme I1 55
Value Description
1 No
2 Mammographically
3 Non-mammographically
9 Primary reason for admission I4 57 - 60
10 Secondary reason for admission I4 62 - 65
11 ICD revision number I1 67  
12 Ethnic group I1 69  
13 Years of full-time education or equivalent I4 71 - 74
14 Smoking I1 76
Value Description
1 Never
2 Past
3 Current
15 Alchohol I3 78 - 80 g/wk
16 Adult height I3 82 - 84 cm
17 Maternal breast cancer history I1 86
Value Description
1 No
2 Yes
 
18 Maternal birth year I2 88 - 89 YY
19 Age of mother at diagnosis/now/death I2 91 - 92  
20 Number of sisters I2 94 - 95  
21 Number of sisters with b.c. history I1 97  
22 Number of daughters I2 99 - 100  
23 Number of daughters with b.c. history I1 102
24 Number of breast biopsies I1 104  
25 Number of screening mammograms I1 106
26 Menarche age I2 108 - 109  
27 Menarche weight I3 111 - 113 kg
28 Weight aged 20 I3 115 - 117 kg 
29 Weight prior to (pseudo)diagnosis I3 119 - 121 kg
30 Menopausal status I1 123
Value Description
1 Premenopausal
2 Perimenopausal
3 Postmenopausal
4 Uncertain
 
31 Menopause age I2 125 - 126  
32 Menopause type I1 128
Value Description
1 Natural
2 Hysterectomy alone
3 Bilateral oophorectomy alone
4 Hysterectomy + oophorectomy
5 Irradiation
6 Other
 
33 Hysterectomy I1 130
Value Description
1 Yes
2 No
 
34 Hysterectomy age I2 132 - 133  
35 Ovarian status I1 135
Value Description
1 Both intact
2 One removed or irradiated
3 Both removed or irradiated
4 Uncertain
36 First ovarian removal age I2 137 - 138
37 Second ovarian removal age I2 140 - 141  
38 Tubal ligation I1 143
Value Description
1 No
2 Yes
 
39 Tubal ligation age I2 145 - 146
40 Medical infertility advice I1 148
Value Description
1 No
2 Yes
41 Total pregnancies I2 150 - 151
42 Total full-term pregnancies I2 153 - 154
43 First full-term birth age I2 156 - 157
44 Comments A 159 - end
BREAST BIOPSIES
Item Description FORTRAN Columns Details
-1 Card type 'B' 1 'BREAST BIOPSIES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st breast biopsy age I2 23 - 24
3 1st breast biopsy result I1 26
Value Description
1 Normal
2 Abnormal
4 2nd breast biopsy age I2 28 - 29
5 2nd breast biopsy result I1 31
Value Description
1 Normal
2 Abnormal
6 3rd breast biopsy age I2 33 - 34
7 3rd breast biopsy result I1 36
Value Description
1 Normal
2 Abnormal
8 4th breast biopsy age I2 38 - 39
9 4th breast biopsy result I1 41
Value Description
1 Normal
2 Abnormal
10 5th breast biopsy age I2 43 - 44
11 5th breast biopsy result I1 46
Value Description
1 Normal
2 Abnormal
(continue for further breast biopsies as necessary)
MAMMOGRAMS
Item Description FORTRAN Columns Details
-1 Card type 'C' 1 'MAMMOGRAMS'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st mammogram age I2 23 - 24
3 1st mammogram result I1 26
Value Description
1 Normal
2 Abnormal
4 2nd mammogram age I2 28 - 29
5 2nd mammogram result I1 31
Value Description
1 Normal
2 Abnormal
6 3rd mammogram age I2 33 - 34
7 3rd mammogram result I1 36
Value Description
1 Normal
2 Abnormal
8 4th mammogram age I2 38 - 39
9 4th mammogram result I1 41
Value Description
1 Normal
2 Abnormal
10 5th mammogram age I2 43 - 44
11 5th mammogram result I1 46
Value Description
1 Normal
2 Abnormal
(continue for further mammograms as necessary)
SISTERS
Item Description FORTRAN Columns Details
-1 Card type 'D' 1 'SISTERS'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Sister 1 breast cancer history I1 23
Value Description
1 No
2 Yes
3 Sister 1 birth year I2 25 - 26 YY
4 Sister 1 age at diagnosis/now/death I2 28 - 29
5 Sister 2 breast cancer history I1 31
Value Description
1 No
2 Yes
6 Sister 2 birth year I2 33 - 34 YY
7 Sister 2 age at diagnosis/now/death I2 36 - 37
8 Sister 3 breast cancer history I1 39
Value Description
1 No
2 Yes
9 Sister 3 birth year I2 41 - 42 YY
10 Sister 3 age at diagnosis/now/death I2 44 - 45
11 Sister 4 breast cancer history I1 47
Value Description
1 No
2 Yes
12 Sister 4 birth year I2 49 - 50 YY
13 Sister 4 age at diagnosis/now/death I2 52 - 53
14 Sister 5 breast cancer history I1 55
Value Description
1 No
2 Yes
11 Sister 5 birth year I2 57 - 58 YY
12 Sister 5 age at diagnosis/now/death I2 60 - 61
(continue for further sisters as necessary)
DAUGHTERS
Item Description FORTRAN Columns Details
-1 Card type 'E' 1 'DAUGHTERS'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Daughter 1 breast cancer history I1 23
Value Description
1 No
2 Yes
3 Daughter 1 birth year I2 25 - 26 YY
4 Daughter 1 age at diagnosis/now/death I2 28 - 29
5 Daughter 2 breast cancer history I1 31
Value Description
1 No
2 Yes
6 Daughter 2 birth year I2 33 - 35 YY
7 Daughter 2 age at diagnosis/now/death I2 37 - 38
8 Daughter 3 breast cancer history I1 40
Value Description
1 No
2 Yes
9 Daughter 3 birth year I2 41 - 42 YY
10 Daughter 3 age at diagnosis/now/death I2 44 - 45
11 Daughter 4 breast cancer history I1 47
Value Description
1 No
2 Yes
12 Daughter 4 birth year I2 49 - 50 YY
13 Daughter 4 age at diagnosis/now/death I2 52 - 53
14 Daughter 5 breast cancer history I1 55
Value Description
1 No
2 Yes
15 Daughter 5 birth year I2 57 - 58 YY
16 Daughter 5 age at diagnosis/now/death I2 60 - 61
(continue for further daughters as necessary)
BABY (one line for each pregnancy or, if multiple birth, for each baby)
Item Description FORTRAN Columns Details
-1 Card type 'F' 1 'BABY'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Number of babies at this delivery I1 23
3 Delivery/end date I6 25 - 30 DDMMYY
4 Pregnancy weeks I2 32 - 33
5 Outcome I1 35
Value Description
1 Live birth
2 Stillbirth
3 Miscarriage / spontaneous abortion
4 Termination / induced abortion
5 Ectopic gestation
6 Hydatiform mole
6 Hormones given to sustain pregnancy I1 37
Value Description
1 No
2 Yes
7 Months of hormones I1 39
8 Hormone brand I2 41 - 42
9 Breastfeeding weeks I2 44 - 45
10 Lactation suppressed by hormones I1 47
Value Description
1 No
2 Yes
11 Baby gender I1 49
Value Description
1 Male
2 Female
COMBINED ORAL CONTRACEPTIVES
Item Description FORTRAN Columns Details
-1 Card type 'G' 1 'COMBINED ORAL CONTRACEPTIVES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date first combined oral contraceptive I4 23 - 26 MMYY
3 Date last combined oral contraceptive I4 28 - 31 MMYY
4 Total combined oral contraceptive months I3 33 - 35
5 Total use months pre-1st full-term pregnancy I3 37 - 39
6 1st brand combined oral used I2 41 - 42
7 2nd brand combined oral used I2 44 - 45
8 3rd brand combined oral used I2 47 - 48
9 4th brand combined oral used I2 50 - 51
10 5th brand combined oral used I2 53 - 54
11 6th brand combined oral used I2 56 - 57
12 7th brand combined oral used I2 59 - 60
13 8th brand combined oral used I2 62 - 63
14 9th brand combined oral used I2 65 - 66
(continue for further combined oral contraceptives as necessary)
PROGESTAGEN-ONLY CONTRACEPTIVES
Item Description FORTRAN Columns Details
-1 Card type 'H' 1 'PROGESTAGEN-ONLY ORAL CONTRACEPTIVES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date first progestagen-only oral contraceptive I4 23 - 26 MMYY
3 Date last progestagen-only oral contraceptive I4 28 - 31 MMYY
4 Total progestagen-only oral months I3 33 - 35
5 Total use months pre-1st full-term pregnancy I3 37 - 39
6 1st brand progestagen-only oral used I2 41 - 42
7 2nd brand progestagen-only oral used I2 44 - 45
8 3rd brand progestagen-only oral used I2 47 - 48
9 4th brand progestagen-only oral used I2 50 - 51
10 5th brand progestagen-only oral used I2 53 - 54
11 6th brand progestagen-only oral used I2 56 - 57
12 7th brand progestagen-only oral used I2 59 - 60
13 8th brand progestagen-only oral used I2 62 - 63
14 9th brand progestagen-only oral used I2 65 - 66
(continue for further progestagen-only oral contraceptives as necessary)
DEPOT PROGESTAGEN CONTRACEPTIVES
Item Description FORTRAN Columns Details
-1 Card type 'I' 1 'DEPOT PROGESTAGEN CONTRACEPTIVES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date first depot progestagen I4 23 - 26 MMYY
3 Date last depot progestagen I4 28 - 31 MMYY
4 Total depot progestagen months I3 33 - 35
5 Total use months pre-1st full-term pregnancy I3 37 - 39
6 1st brand depot progestagen used I2 41 - 42
7 2nd brand depot progestagen used I2 44 - 45
8 3rd brand depot progestagen used I2 47 - 48
9 4th brand depot progestagen used I2 50 - 51
10 5th brand depot progestagen used I2 53 - 54
11 6th brand depot progestagen used I2 56 - 57
12 7th brand depot progestagen used I2 59 - 60
13 8th brand depot progestagen used I2 62 - 63
14 9th brand depot progestagen used I2 65 - 66
(continue for further depot progestagen contraceptives as necessary)
HORMONE REPLACEMENT THERAPY
Item Description FORTRAN Columns Details
-1 Card type 'J' 1 'HORMONE REPLACEMENT THERAPY'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date first hormone replacement therapy I4 23 - 26 MMYY
3 Date last hormone replacement therapy I4 28 - 31 MMYY
4 Total hormone replacement therapy months I3 33 - 35
5 Total use months pre-1st full-term pregnancy I3 37 - 39
6 1st brand hormone replacement therapy I2 41 - 42
7 2nd brand hormone replacement therapy I2 44 - 45
8 3rd brand hormone replacement therapy I2 47 - 48
9 4th brand hormone replacement therapy I2 50 - 51
10 5th brand hormone replacement therapy I2 53 - 54
11 6th brand hormone replacement therapy I2 56 - 57
12 7th brand hormone replacement therapy I2 59 - 60
13 8th brand hormone replacement therapy I2 62 - 63
14 9th brand hormone replacement therapy I2 65 - 66
(continue for further hormone replacement therapies as necessary)
FERTILITY-ENHANCING DRUGS
Item Description FORTRAN Columns Details
-1 Card type 'K' 1 'FERTILITY-ENHANCING DRUGS'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Date first fertility-enhancing drug I4 23 - 26 MMYY
3 Date last fertility-enhancing drug I4 28 - 31 MMYY
4 Total fertility-enhancing drug months I3 33 - 35
5 Total use months pre-1st full-term pregnancy I3 37 - 39
6 1st brand fertility-enhancing drug I2 41 - 42
7 2nd brand fertility-enhancing drug I2 44 - 45
8 3rd brand fertility-enhancing drug I2 47 - 48
9 4th brand fertility-enhancing drug I2 50 - 51
10 5th brand fertility-enhancing drug I2 53 - 54
11 6th brand fertility-enhancing drug I2 56 - 57
12 7th brand fertility-enhancing drug I2 59 - 60
13 8th brand fertility-enhancing drug I2 62 - 63
14 9th brand fertility-enhancing drug I2 65 - 66
(continue for further fertility-enhancing drugs as necessary)
COMBINED ORAL CONTRACEPTIVE EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'L' 1 'COMBINED ORAL CONTRACEPTIVE EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st combined oral contraceptive start date I4 23 - 26 MMYY
3 1st combined oral contraceptive end date I4 28 - 31 MMYY
4 1st combined oral contraceptive brand I2 33 - 34
5 2nd combined oral contraceptive start date I4 36 - 39 MMYY
6 2nd combined oral contraceptive end date I4 41 - 44 MMYY
7 2nd combined oral contraceptive brand I2 46 - 47
8 3rd combined oral contraceptive start date I4 49 - 52 MMYY
9 3rd combined oral contraceptive end date I4 54 - 57 MMYY
10 3rd combined oral contraceptive brand I2 59 - 60
11 4th combined oral contraceptive start date I4 62 - 65 MMYY
12 4th combined oral contraceptive end date I4 67 - 70 MMYY
13 4th combined oral contraceptive brand I2 72 - 73
14 5th combined oral contraceptive start date I4 75 - 78 MMYY
15 5th combined oral contraceptive end date I4 80 - 83 MMYY
16 5th combined oral contraceptive brand I2 85 - 86
(continue for further combined oral contraceptive episodes as necessary)
PROGESTAGEN-ONLY ORAL CONTRACEPTIVE EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'M' 1 'PROGESTAGEN-ONLY ORAL CONTRACEPTIVE EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st progestagen-only oral contraceptive start date I4 23 - 26 MMYY
3 1st progestagen-only oral contraceptive end date I4 28 - 31 MMYY
4 1st progestagen-only oral contraceptive brand I2 33 - 34
5 2nd progestagen-only oral contraceptive start date I4 36 - 39 MMYY
6 2nd progestagen-only oral contraceptive end date I4 41 - 44 MMYY
7 2nd progestagen-only oral contraceptive brand I2 46 - 47
8 3rd progestagen-only oral contraceptive start date I4 49 - 52 MMYY
9 3rd progestagen-only oral contraceptive end date I4 54 - 57 MMYY
10 3rd progestagen-only oral contraceptive brand I2 59 - 60
11 4th progestagen-only oral contraceptive start date I4 62 - 65 MMYY
12 4th progestagen-only oral contraceptive end date I4 67 - 70 MMYY
13 4th progestagen-only oral contraceptive brand I2 72 - 73
14 5th progestagen-only oral contraceptive start date I4 75 - 78 MMYY
15 5th progestagen-only oral contraceptive end date I4 80 - 83 MMYY
16 5th progestagen-only oral contraceptive brand I2 85 - 86
(continue for further progestagen-only oral contraceptive episodes as necessary)
DEPOT PROGESTAGEN EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'N' 1 'DEPOT PROGESTAGEN EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st depot progestagen start date I4 23 - 26 MMYY
3 1st depot progestagen end date I4 28 - 31 MMYY
4 1st depot progestagen brand I2 33 - 34
5 2nd depot progestagen start date I4 36 - 39 MMYY
6 2nd depot progestagen end date I4 41 - 44 MMYY
7 2nd depot progestagen brand I2 46 - 47
8 3rd depot progestagen start date I4 49 - 52 MMYY
9 3rd depot progestagen end date I4 54 - 57 MMYY
10 3rd depot progestagen brand I2 59 - 60
11 4th depot progestagen start date I4 62 - 65 MMYY
12 4th depot progestagen end date I4 67 - 70 MMYY
13 4th depot progestagen brand I2 72 - 73
14 5th depot progestagen start date I4 75 - 78 MMYY
15 5th depot progestagen end date I4 80 - 83 MMYY
16 5th depot progestagen brand I2 85 - 86
(continue for further combined depot progestagen contraceptive episodes as necessary)
HORMONE REPLACEMENT THERAPY EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'O' 1 'HORMONE REPLACEMENT THERAPY EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st hormone replacement therapy start date I4 23 - 26 MMYY
3 1st hormone replacement therapy end date I4 28 - 31 MMYY
4 1st hormone replacement therapy brand I2 33 - 34
5 2nd hormone replacement therapy start date I4 36 - 39 MMYY
6 2nd hormone replacement therapy end date I4 41 - 44 MMYY
7 2nd hormone replacement therapy brand I2 46 - 47
8 3rd hormone replacement therapy start date I4 49 - 52 MMYY
9 3rd hormone replacement therapy end date I4 54 - 57 MMYY
10 3rd hormone replacement therapy brand I2 59 - 60
11 4th hormone replacement therapy start date I4 62 - 65 MMYY
12 4th hormone replacement therapy end date I4 67 - 70 MMYY
13 4th hormone replacement therapy brand I2 72 - 73
14 5th hormone replacement therapy start date I4 75 - 78 MMYY
15 5th hormone replacement therapy end date I4 80 - 83 MMYY
16 5th hormone replacement therapy brand I2 85 - 86
(continue for further hormone replacement therapy episodes as necessary)
FERTILITY-ENHANCING DRUG EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'P' 1 'FERTILITY-ENHANCING DRUG EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 1st fertility-enhancing drug start date I4 23 - 26 MMYY
3 1st fertility-enhancing drug end date I4 28 - 31 MMYY
4 1st fertility-enhancing drug brand I2 33 - 34
5 2nd fertility-enhancing drug start date I4 36 - 39 MMYY
6 2nd fertility-enhancing drug end date I4 41 - 44 MMYY
7 2nd fertility-enhancing drug brand I2 46 - 47
8 3rd fertility-enhancing drug start date I4 49 - 52 MMYY
9 3rd fertility-enhancing drug end date I4 54 - 57 MMYY
10 3rd fertility-enhancing drug brand I2 59 - 60
11 4th fertility-enhancing drug start date I4 62 - 65 MMYY
12 4th fertility-enhancing drug end date I4 67 - 70 MMYY
13 4th fertility-enhancing drug brand I2 72 - 73
14 5th fertility-enhancing drug start date I4 75 - 78 MMYY
15 5th fertility-enhancing drug end date I4 80 - 83 MMYY
16 5th fertility-enhancing drug brand I2 85 - 86
(continue for further fertility-enhancing drug episodes as necessary)
OTHER-HORMONE EPISODES
Item Description FORTRAN Columns Details
-1 Card type 'Q' 1 'OTHER-HORMONE EPISODES'
0 Study number I6 3 - 8
1 Patient identifier A12 10 - 21
2 Reason for 1st-time use I1 23
Value Description
1 Acne
2 Infertility
3 Period regulation
4 Other
3 1st other-hormone start date I4 25 - 28 MMYY
4 1st other-hormone end date I4 30 - 33 MMYY
5 1st other-hormone brand I2 35 - 36
6 Reason for 2nd-time use I1 38
Value Description
1 Acne
2 Infertility
3 Period regulation
4 Other
7 2nd other-hormone start date I4 40 - 43 MMYY
8 2nd other-hormone end date I4 45 - 48 MMYY
9 2nd other-hormone brand I2 50 - 51
10 Reason for 3rd-time use I1 53
Value Description
1 Acne
2 Infertility
3 Period regulation
4 Other
11 3rd other-hormone start date I4 55 - 58 MMYY
12 3rd other-hormone end date I4 60 - 63 MMYY
13 3rd other-hormone brand I2 65 - 66
14 Reason for 4th-time use I1 68
Value Description
1 Acne
2 Infertility
3 Period regulation
4 Other
15 4th other-hormone start date I4 70 - 73 MMYY
16 4th other-hormone end date I4 75 - 78 MMYY
17 4th other-hormone brand I2 80 - 81
18 Reason for 5th-time use I1 83
Value Description
1 Acne
2 Infertility
3 Period regulation
4 Other
19 5th other-hormone start date I4 85 - 88 MMYY
20 5th other-hormone end date I4 90 - 93 MMYY
21 5th other-hormone brand I2 95 - 96
(continue for further other-hormone episodes as necessary)
Missing or unknown items are left blank or set to zero.

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[End of document, updated to 7 June 2000]